Her mother Jenny said: "I'd say in Tilly's life at least about 10 times I've honestly thought that she's gone, she's died, with the seizures and going on to ITU and them all saying that we can't stop it and the panic."
"It is important that the taskforce is established as soon as possible," said Welsh, "because without it we don't have that driving force [and] those big, bold policies."
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